What can we do if our loved one is suffering? Seeing someone we care about in pain is never easy but with some help, you can help them get through life’s challenges more easily.
I’ve shared before about what helps me when it comes to finding peace and equanimity with pain and chronic illness. But what happens when it’s not you but your child who is ill or struggling with life? When it is they who suffer and cry out in pain?
“We are not the survival of the fittest. We are the survival of the nurtured.” – Louis Cozolino
My daughter is currently being assessed for Ehlers Danlos Syndrome and Hypermobility Syndrome Disorder. Her joints regularly subluxate, she often comes home from school limping and can struggle with even the simplest of tasks from brushing her hair to getting up from a chair. On top of this, she also experiences fatigue and chronic headaches.
There is no cure for what she is being assessed for, though physiotherapy can help, and yet every single day she amazes me! Each morning she gets up, goes to school and works incredibly hard when I’m sure she would rather stay in bed. She cares for her friends, nature and still manages to have the energy to argue with me!
When this illness was first mentioned; however it gutted me, perhaps it’s because I know how undeniably hard chronic pain is. There is no unsubscribe button; it’s invisible and can be tricky to downright exhausting to get the support you need. Let’s be honest; it is neither the future nor present I would have wished for her. But perhaps, like my experience of chronic illness, it will strengthen her, developing her in ways I can’t even imagine. One can only hope.
It’s ironic that to be in a family is to be continuously wounded; we love deeply and hurt deeply. So when sadness does visit my door or fear makes itself at home I try and see it as a sign that I need to pause, breathe and reconnect with myself.
There are several small practices that help me stay balanced, from living in the moment, being out in nature to practicing gratefulness. But I want to give you something practical – a small offering that helped me navigate emotionally turbulent waters.
When you feel the heat of a powerful, overwhelming emotion or situation take some slow deep breaths in through the nose and gently out through the mouth. Gradually let your breathing return to normal and begin the first step of rain.
The R is to simply recognize what is currently happening
Are you feeling the weight of worry?
Is the squeeze of stress tight in your chest? Recognize any thoughts, feelings, and sensations that are present. When we can recognize that we are caught in suffering it enables us to hit the pause button and move forward from a wiser, more friendly position.
The A is to allow
Allow the thoughts, feelings, and sensations to be there; we don’t have to control them or suppress them. This can be tricky at first, as humans we are resistant to feeling any sense of discomfort.
We withdraw, constrict and blame to try and make ourselves feel better, but there is freedom to be found in simply allowing. So, for now, take deep, gentle breaths and say to yourself, “okay this is how it is right now.”
Are you terrifying yourself with future scenarios that have not yet happened?
What core beliefs underlie your feelings? Should that life be different? That you aren’t going to cope?
Most importantly how does this feel physically in your body when you are scaring or criticizing yourself? Gently explore from your head to the tips of your toes and see where there might be tension, pain, heaviness or unease. What do those parts of you need? What would make them feel a little better?
This leads on beautifully to the N of rain which stands for nourish and non-identification
Tara Brach, a wonderful meditation teacher, and psychologist has a lovely practice I regularly use. She suggests putting your hand lightly and tenderly on your heart (interestingly this has been shown to soothe and calm the amygdala). Turn towards yourself lovingly and as Tara says sense the possibility of offering yourself what is most needed. Perhaps caring words such as, “it’s ok I know this is hard, I care about you, I love you”. Maybe you could imagine a loving relative from your past soothing you or perhaps you could picture a beloved pet offering you affection.
How does that feel? Many people struggle at first with offering themselves love and tenderness, perhaps it feels silly or maybe you don’t believe you deserve love but I can’t think of a kinder thing to do for ourselves and others than be genuinely and lovingly present with our suffering.
When I was able to do this practice, I stopped identifying as somebody who was suffering alone.
I was able to connect compassionately with the millions of other parents around the world whose children may also be unwell and in pain.
I could let go just enough to stop identifying with worry and rest in the awareness that I was caught in a spiral of fear.
Fear that I could observe – it gave me some much-needed breathing space. Most importantly I was then able to be truly present for my daughter. I could authentically offer her my peace, my smile, my time and my hugs.
So what do you do when you hear your child may have a chronic illness when you make peace with your own persistent pain but are left in a heap on floor heart unraveling?
You find peace when peace is scarce, you love, you hope and you cry, you put the kettle on and maybe pick up some litter. You just keep breathing.